Assessing Acceptance and Privacy Preferences of Third-party Financial Data Sharing in Bipolar Disorder

2026-10-02

AI Summary

This study addresses the financial instability and data privacy concerns of individuals with bipolar disorder by providing the first systematic quantification of differences in privacy preferences toward third-party financial interventions between manic and remission phases. Employing a preregistered factorial vignette survey combined with multilevel linear modeling, we assessed patients’ willingness to share data across distinct mood states. Results indicate that precise mood state detection is critical for optimizing intervention timing, while strong clinician-patient trust significantly enhances data-sharing willingness. These findings offer empirical evidence for developing digital monitoring tools that effectively balance privacy protection with clinical utility.

Abstract

Bipolar disorder is strongly associated with financial instability. We examine how different interventions motivate individuals with bipolar disorder to share financial data with others. This approach can inform the development of tools for digital monitoring and intervention designed to promote financial stability in this population. 500 individuals with BD completed a pre-registered factorial vignette survey to examine level of comfort with hypothetical scenarios involving third-party financial interventions during symptomatic and euthymic periods. Scenario components were systematically varied between third-party actors, mood states, and intervention types. Participants rated sharing comfort on a 0-10 point scale. Multilevel models tested differences alongside clinical and financial histories, relational trust, and personality. Participants were most comfortable involving care partners in financial planning. They were more comfortable with temporary spending restrictions during symptomatic states than euthymic periods, underscoring the importance of accurate mood detection for intervention delivery. Prior financial help-seeking behavior and higher relational trust predicted greater comfort. Bankruptcy experience --- declared by 11.4% and considered by 31.7% --- was associated with increased comfort with spending restrictions. Individuals with psychiatric advance directives (8%) were significantly more comfortable sharing spending behaviors than those without. Comfort with financial interventions was higher among those with prior financial challenges or help-seeking histories. Participants distinguished between symptomatic and euthymic periods, favoring targeted, time-limited restrictions over general monitoring. These findings extend prior work on financial data sharing for illness self-management.

Problem

• Bipolar Disorder
• Financial Data Sharing
• Privacy Preferences
• Digital Intervention
• Third-party Monitoring

Innovation

• Bipolar Disorder
• Factorial Vignette Survey
• Financial Data Sharing
• Multilevel Models
• Digital Intervention